The Hardest Thing I’ve Ever Done
The devastating truth behind CLN3 Batten Disease Part V
8 min readDec 17, 2021
Things have been difficult lately, I’ll admit. Working 3 jobs in order to even attempt to give my nephew the life he deserves while trying to build an even better future for him and for ourselves, is not easy. This is stressful. This is hard. This is more than I bargained for. But I do it, willingly, because I love…
